Course Text: American Nurses Association. (2008). Nursing informatics: Scope and standards of practice. Silver Spring, MD: Author.
Chapter 16, “Personal Health Record: Managing Personal Health”
This chapter provides an in-depth look at consumer expectations, as well as barriers and innovations that are driving the policies of electronic personal health records.
Adams, S. A. (2010). Blog-based applications and health information: Two case studies that illustrate important questions for Consumer Health Informatics (CHI) research. International Journal of Medical Informatics, 79(6), e89–e96./p>
The author examines existing literature to evaluate the impact that Web 2.0 technologies have on health management.
Keselman, A., Logan, R., Arnott Smith, C., Leroy, G., & Zeng-Treitler, Q. (2008). Developing informatics tools and strategies for consumer-centered health communication. Journal of the American Medical Informatics Association, 15(4), 473–483.
A detailed analysis of present and future barriers found in managing e-health informational resources and consumer communications is given in this article.
Lewis, D. (2007). Evolution of consumer health informatics [Editorial]. CIN: Computers, Informatics, Nursing, 25(6), 316.
This article gives a brief overview of the Internet’s role in expanding health care’s consumer network.
Misra, R., Mark, J. H., Khan, S., & Kukafka, R. (2010). Using design principles to foster understanding of complex health concepts in consumer informatics tools. AMIA 2010 Symposium Proceedings, 492-496./p>
The researchers in this qualitative study examine the effectiveness that a decision support tool, Tailored Lifestyle Conversations (TLC), has on patients’ ability to comprehend presented information.
Pak, R., Price, M. M., & Thatcher, J. (2009). Age-sensitive design of online health information: Comparative usability study. Journal of Medical Internet Research, 11(4), e45.
The authors of this study analyze the usability results of tag-based systems vs. hierarchal informational systems on two different age groups to determine which design allows for more efficient means of information assembly.
Powell, J., Inglis, N., Ronnie, J., & Large, S. (2011). The characteristics and motivations of online health information seekers: Cross-sectional survey and qualitative interview study. Journal of Medical Internet Research, 13(1), e20.
View excerpts from the online questionnaires and follow-up interviews used in this study to identify common themes around motivation, challenges, strategies, and benefits regarding individuals’ use of the Internet to gather health information.
Health on the Net Foundation. (2011).
Retrieved from http://www.hon.ch/
Health on the Net Foundation provides consumers with navigation safety tips and the ability to search only those websites that adhere to the credibility standards of the HONcode.
The PEW Charitable Trusts. (2011). Health.
Retrieved from http://www.pewtrusts.org/our_work_category.aspx?id=184
At this website you can find information about the consumer-centered health initiatives that the PEW group is working to challenge and improve.
Robert Wood Johnson Foundation. (2011). Publications and research. Retrieved from http://www.rwjf.org/en/research-publications.html
Use this website to view a wide variety of research-driven publications with topics ranging from obesity to medical malpractice.
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